Course
OHRP Exploratory Workshop: Approaches to Protecting Privacy & Confidentiality
Self-paced
Full course description
Thursday, September 19th, 2019 from 8:55am-11:00am MDT, Gesteland-White Auditorium, Eccles Institute of Human Genetics at the University of Utah
Speakers representing diverse stakeholders in the research enterprise will discuss policies, techniques, and technologies for controlled use, data protection, and informed consent as ways to protect individual privacy and data confidentiality. The goal of this session is to explore the challenges of privacy protection for health-related big data research conducted on a variety of platforms and in various settings. Panelists will also consider the ethical and practical challenges posed by data-sharing across cultures and boundaries.
Speakers representing diverse stakeholders in the research enterprise will discuss policies, techniques, and technologies for controlled use, data protection, and informed consent as ways to protect individual privacy and data confidentiality. The goal of this session is to explore the challenges of privacy protection for health-related big data research conducted on a variety of platforms and in various settings. Panelists will also consider the ethical and practical challenges posed by data-sharing across cultures and boundaries.