Course
OHRP Exploratory Workshop: Protecting Privacy & Confidentiality: A Shared Responsibility
Self-paced
Full course description
Thursday, September 19th, 2019 from 12:00pm-2:10pm MDT, Gesteland-White Auditorium, Eccles Institute of Human Genetics at the University of Utah
The goals of this session are to discuss some of the challenges facing IRBs and institutions in the review of proposed data sharing options for research that falls under the Common Rule, and explore ethical oversight of big data research that falls outside the scope of the Common Rule. Invitees will explore the possible roles of a variety of stakeholders for supporting responsible conduct of research involving big data in addition to potential approaches to ethical evaluation of proposed big data research.
The goals of this session are to discuss some of the challenges facing IRBs and institutions in the review of proposed data sharing options for research that falls under the Common Rule, and explore ethical oversight of big data research that falls outside the scope of the Common Rule. Invitees will explore the possible roles of a variety of stakeholders for supporting responsible conduct of research involving big data in addition to potential approaches to ethical evaluation of proposed big data research.